the.betterleys.com

GI Update

January 16th, 2010

So James (lil) saw the GI Dr again yesterday, for his 2 month recheck.
If you remember, we put him thru a total clean out, followed by daily maintenance and a rescue plan for anytime he didn’t go bathroom in a day.

The Dr we saw last time wasn’t there this time (we see someone locally who travels 3 hours 1x a month to see ppl in our area- these two Drs alternate/flip/share).

So this is the result.

They drew blood to check for celiac again, those results will take about a week to learn.

They did that now, as J’s been eating wheat for 4 months, the results should be reliable. Of course, there is the chance it’ll be the same-and be potentially a false negative….

They did an Xray which showed J has some issues that need addressing, so we are doing a new version of the wipe out - hoping to breakup and get rid of that. This might be the cause for his other issues - like a slip and slide action. So we do the worst part this weekend, and continue for a week with a smaller dose-then call the Dr and if it’s not working, she’s adding a different medication/further instruction.

Lastly, if the celiac is a positive result, James needs an Endoscopy. This will happen at a hospital 3 hours away, and they’ll put James to sleep and do biopsy are areas of his digestive tract/ect. This would be to confirm the positive result with visual confirmation of damage to his tissues from the gluten.

If the test is negative, he likely will still need one especially if there is no change in things when we see the Dr again in February, this will be more exploratory and looking for a cause.

This means James is eating wheat still, until all this is cleared up.

His ezcema and dermatitis is getting much worse as a result of the weather and being on his fourth month of eating wheat products. We have an anti-itch oral prescription the allergist gave us to help stop that, so we’ve cracked that open. It’s expensive and thankfully she gave us quite a few sample vials. We tried Aveeno lotion but it’s only made him more scratchy, even though it was meant to be helping ‘anti-itch’. We are back to just using the prescription lotion to try to clear up the raw areas he’s scratched.

I cringe at putting food into his body I know to make him unwell for another month or so.

The Drs agreed with us that there are studies that show that James’ behavior is not uncommon when he’s feeling bad, from that of someone diabetic who has a crash in sugar. When he’s having a bad stretch / cycle, he can be very irritable, cranky and doesn’t listen. This is much different than just being 2, and I was very glad to hear I wasn’t totally insane to think that there were changes in his actions.

Today he’s not much for eating, but we are working on clearing out things, so it’s to be expected.

I/We just SO want this over, and to just get on a treatment course for whatever it is - even if it’s just the wheat allergy. It’s crazy to even think about potty training when you can’t control your own functions and James is actually ahead of Evelyn in readiness. He does use it on occasion already.

Entry Filed under: Baby