Endoscopy Scheduled
James will have his endoscopy in mid March. It’s further away than we would have liked, but the only other date (sooner) they had available we had a conflict with.
We’ve had to take James off barley, as he’s gotten a horrible diaper style rash while eating it.
James ate rye once and broke out. Finding things to make that he’d like to eat with rye proved difficult and quite honestly we don’t need that added stress either of him not eating.
Oat (though is considered in some cases safe for celiac) resulted in bad bad diapers. I’m sure we’ll see the allergist at some point on this.
Reluctantly we’ve put him back on wheat. While he is allergic, life at least is less stressful in that we know what (essentially) to expect from wheat and he’s still getting gluten (and in good quantity). It makes for tricky days diaper wise and days when he’s itchy (we had that with oat and barley too) and changes his mood, but we’ll have to push through it. We wish things were different, but it is out of our hands.
I think we’ll be able to give him a combination of wheat/gluten free foods and then like one thing a day that’s full on wheat/gluten to keep the possible damage from the gluten happening.
T minus 35 days till we hopefully have some answers. That’s if they give us answers that day.
For anyone unaware of the procedure;
James will get an IV, and be put under anesthesia and a small tube with space for tools/cameras to pass through will be placed down his throat - it will continue on to his stomach, and then his intestines. They will look at his stomach and check for signs of damage and move on ward to the intestines and the villi where they will take a biopsy and look for damage/signs, the villi should be inflamed if he has celiac. They may also take biopsy from other areas, not sure. From what I’ve gathered, they should be able to tell us some results that day but the biopsy will take a few days to read.
It will take place 2 hours away, the actual procedure itself will take around 20-45 minutes. We’ll need to be there before the procedure and as we learned with E’s brachio/plagio stuff, usually these things aren’t on time. Then he’ll be in recovery for who knows how long. It will be a long day.
We have to take J to his pediatrician to get a pre-op physical done.
Between our upcoming visit to family and keeping the kids not sick for that, and then getting home and needing to keep him healthy for his own procedure, they’ll be stir crazy! Heck, I will!
Add comment February 9th, 2010