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Fever

March 11th, 2010

So J has a fever today - hoping it goes away with his nap, but he’s coughing I can hear and isn’t sleeping well at all.

I can to the realization today that - I bet James knew all along - that we have to pay for J do have his procedure and I”m just so drained from everything else going on I am just negative. While we don’t pay the full price of it, we do have to pay a %, upto our deductible for the year on his bills - and ours too for this type of thing - like when we had J&E we had to pay our full limit deductible….. It slipped my mind in every way possible and I’m just deflated at the thought of having to find and fork over a large sum of money for them to look and take parts of his body.

But if we figure out or are a step closer to knowing what’s up, because something is.. then I guess it’s worth it. We’ll be pushing ot get further testing done THIS year though, if it isn’t and is needed, if it’s going to result in more deductibles. Blech!

I am just reaching the end of my ropes and I am worried about him and what if something goes wrong, what if he gets sick from the anesthesia, what if they rip a hole in him…. what if this doesn’t give us an answer. What if he doesn’t get better when he’s off wheat/gluten and we are going thru this longer.

I’m discouraged or frustrated or both that the pattern just isn’t being put together by someone.
James has days leading up to his ‘flare up’ that he stops eating.
He has a flare up, lasting several days, followed by little to no eating.
His joints ache.
He sucks his food, and has in the last few months started to spit it out instead of eat it. He this last week or so has started vomiting it out as he tries to get rid of it.
He pees more than he drinks in, when he’s on wheat.
He hasn’t gained any weight in 3 months.

I know what ever is going on isn’t right - and that’s why we’ve been persistent in getting it figured out, even if it’s taken longer than I really rather have liked. I am just not a fan of all this.

Regardless of the results, he’s going on wheat & gluten free foods starting the 18th…

Entry Filed under: Baby